8:00am Business Center Follow-up
8:30am Dr. Donna Weber (the Multiple Myeloma Cancer specialist)
she explains and draws us a picture of all the problems Ed has and the challenges he faces.He is facing a long and hard road.The best way right now is to take the drug REVLIMID (a pill form of chemotherapy) and Dexamethasone (a steroid).
With only the Myeloma and the drugs @ 25mg he would have a 95% rate of remission....With just the Multiprolifeative Disease: Myelofibrisos and Revlimid 10mg and the Steriods he could get up to 75% remission,, but with the Myelodysplastic it lowers the rate and now with all three problems and both drugs,,, he has a 30% chance of remission.But because he has such a large spleen and low platelet count she is going to start him on 5mg...So we fill out the papers and she writes a prescription.WHICH CANNOT BE FILLED AT ANY PHARMACY! so we have to apply for the drug through the pharmacy at MD Anderson..
Now we go home and wait for the drugs to be mailed to us and hope we got in the program that costs us less than $4000 a month.
Now I cry at the drop of a hat.Everything is going wrong.If it weren't for bad luck I'd have no luck at all .